You are not alone. Here is where to start: learn the basics, find a specialist or center that sees X-linked hereditary sensory and autonomic neuropathy with hearing loss, look for clinical trials, and connect with others living with it — all in one place.
Open the full X-linked hereditary sensory and autonomic neuropathy with hearing loss hub →X-linked hereditary sensory and autonomic neuropathy with hearing loss is a rare condition. Also known as X-linked HSAN with deafness, X-linked HSAN with hearing loss, X-linked auditory neuropathy with peripheral sensory neuropathy type 1, X-linked hereditary sensory and autonomic neuropathy with hearing loss. Tomeko brings together the specialists, research, clinical trials, treatments and community for X-linked hereditary sensory and autonomic neuropathy with hearing loss so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:139583 · OMIM 300614 · ICD-10 G60.8 · GARD 0012731
Start by learning the basics from an authoritative source, find a specialist or center that sees X-linked hereditary sensory and autonomic neuropathy with hearing loss, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat X-linked hereditary sensory and autonomic neuropathy with hearing loss, filtered to your area.
Tomeko shows live, recruiting studies for X-linked hereditary sensory and autonomic neuropathy with hearing loss from ClinicalTrials.gov on the hub.