You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Worth disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full Worth disease hub →Worth disease is a rare condition. Also known as Autosomal dominant osteosclerosis, Worth type, Worth syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Worth disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2790 · OMIM 144750 · ICD-10 Q78.2 · GARD 0000390
Start by learning the basics from an authoritative source, find a specialist or center that sees Worth disease, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Worth disease, filtered to your area.
Tomeko shows live, recruiting studies for Worth disease from ClinicalTrials.gov on the hub.