You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Wooly hair, look for clinical trials, and connect with others living with it — all in one place.
Open the full Wooly hair hub →Wooly hair is a rare condition. Also known as Familial woolly hair syndrome, Familial wooly hair syndrome, Hereditary woolly hair syndrome, Hereditary wooly hair syndrome, Wooly hair. Tomeko brings together the specialists, research, clinical trials, treatments and community for Wooly hair so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:170 · OMIM 194300, 278150, 604379 · ICD-10 Q84.1 · GARD 0005597
Start by learning the basics from an authoritative source, find a specialist or center that sees Wooly hair, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Wooly hair, filtered to your area.
Tomeko shows live, recruiting studies for Wooly hair from ClinicalTrials.gov on the hub.