You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Wolfram syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Wolfram syndrome hub →Wolfram syndrome is a rare condition. Also known as Arginine vasopressin deficiency- diabetes mellitus-optic atrophy-deafness syndrome, Arginine vasopressin deficiency- diabetes mellitus-optic atrophy-hearing loss syndrome, DIDMOAD syndrome, Diabetes insipidus-diabetes mellitus-optic atrophy-deafness syndrome, Diabetes insipidus-diabetes mellitus-optic atrophy-hearing loss syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Wolfram syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:3463 · OMIM 222300, 598500, 604928 · ICD-10 E34.8 · GARD 0007898
Start by learning the basics from an authoritative source, find a specialist or center that sees Wolfram syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Wolfram syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Wolfram syndrome from ClinicalTrials.gov on the hub.