You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Wieacker-Wolff syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Wieacker-Wolff syndrome hub →Wieacker-Wolff syndrome is a rare condition. Also known as Foot contractures-muscle atrophy-oculomotor apraxia syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Wieacker-Wolff syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:3454 · OMIM 301041, 314580 · ICD-10 Q87.8 · GARD 0007890
Start by learning the basics from an authoritative source, find a specialist or center that sees Wieacker-Wolff syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Wieacker-Wolff syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Wieacker-Wolff syndrome from ClinicalTrials.gov on the hub.