You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Walker-Warburg congenital muscular dystrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Walker-Warburg congenital muscular dystrophy hub →Walker-Warburg congenital muscular dystrophy is a rare condition. Also known as HARD syndrome, Hydrocephalus-agyria-retinal dysplasia syndrome, WWS. Tomeko brings together the specialists, research, clinical trials, treatments and community for Walker-Warburg congenital muscular dystrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:899 · OMIM 236670, 253280, 253800 · ICD-10 G71.2 · GARD 0002599
Start by learning the basics from an authoritative source, find a specialist or center that sees Walker-Warburg congenital muscular dystrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Walker-Warburg congenital muscular dystrophy, filtered to your area.
Tomeko shows live, recruiting studies for Walker-Warburg congenital muscular dystrophy from ClinicalTrials.gov on the hub.