You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Visceral heterotaxy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Visceral heterotaxy hub →Visceral heterotaxy is a rare condition. Also known as Heterotaxy, Heterotaxy syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Visceral heterotaxy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:450 · OMIM 270100, 306955, 601086 · ICD-10 Q89.3 · GARD 0010875
Start by learning the basics from an authoritative source, find a specialist or center that sees Visceral heterotaxy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Visceral heterotaxy, filtered to your area.
Tomeko shows live, recruiting studies for Visceral heterotaxy from ClinicalTrials.gov on the hub.