You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Vici syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Vici syndrome hub →Vici syndrome is a rare condition. Also known as Corpus callosum agenesis-cataract-immunodeficiency syndrome, Dionisi-Vici-Sabetta-Gambarara syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Vici syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1493 · OMIM 242840 · ICD-10 Q87.8 · GARD 0000448
Start by learning the basics from an authoritative source, find a specialist or center that sees Vici syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Vici syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Vici syndrome from ClinicalTrials.gov on the hub.