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VEXAS syndrome

Just diagnosed with VEXAS syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees VEXAS syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full VEXAS syndrome hub →

Overview

VEXAS syndrome is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for VEXAS syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:596753 · OMIM 301054 · ICD-10 M35.8 · GARD 0015001

Find care for VEXAS syndrome

Authoritative references for VEXAS syndrome

Common questions

I was just diagnosed with VEXAS syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees VEXAS syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for VEXAS syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat VEXAS syndrome, filtered to your area.

Are there clinical trials for VEXAS syndrome?

Tomeko shows live, recruiting studies for VEXAS syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com