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Van Maldergem syndrome

Just diagnosed with Van Maldergem syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Van Maldergem syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Van Maldergem syndrome hub →

Overview

Van Maldergem syndrome is a rare condition. Also known as Van Maldergem syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Van Maldergem syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:314679 · OMIM 601390, 615546 · ICD-10 Q87.8 · GARD 0005456

Find care for Van Maldergem syndrome

Authoritative references for Van Maldergem syndrome

Common questions

I was just diagnosed with Van Maldergem syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Van Maldergem syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Van Maldergem syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Van Maldergem syndrome, filtered to your area.

Are there clinical trials for Van Maldergem syndrome?

Tomeko shows live, recruiting studies for Van Maldergem syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com