You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Van der Woude syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Van der Woude syndrome hub →Van der Woude syndrome is a rare condition. Also known as Cleft lip/palate with mucous cysts of lower lip, Lip-pit syndrome, VWS. Tomeko brings together the specialists, research, clinical trials, treatments and community for Van der Woude syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:888 · OMIM 119300, 604547, 606713 · ICD-10 Q38.0 · GARD 0008414
Start by learning the basics from an authoritative source, find a specialist or center that sees Van der Woude syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Van der Woude syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Van der Woude syndrome from ClinicalTrials.gov on the hub.