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VACTERL with hydrocephalus

Just diagnosed with VACTERL with hydrocephalus?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees VACTERL with hydrocephalus, look for clinical trials, and connect with others living with it — all in one place.

Open the full VACTERL with hydrocephalus hub →

Overview

VACTERL with hydrocephalus is a rare condition. Also known as Sujansky-Leonard syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for VACTERL with hydrocephalus so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:3412 · OMIM 276950, 314390 · ICD-10 Q87.8 · GARD 0000272

Find care for VACTERL with hydrocephalus

Authoritative references for VACTERL with hydrocephalus

Common questions

I was just diagnosed with VACTERL with hydrocephalus — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees VACTERL with hydrocephalus, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for VACTERL with hydrocephalus?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat VACTERL with hydrocephalus, filtered to your area.

Are there clinical trials for VACTERL with hydrocephalus?

Tomeko shows live, recruiting studies for VACTERL with hydrocephalus from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com