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Usher syndrome type 1D

Just diagnosed with Usher syndrome type 1D?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Usher syndrome type 1D, look for clinical trials, and connect with others living with it — all in one place.

Open the full Usher syndrome type 1D hub →

Overview

Usher syndrome type 1D is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Usher syndrome type 1D so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: GARD 0005438

Find care for Usher syndrome type 1D

Authoritative references for Usher syndrome type 1D

Common questions

I was just diagnosed with Usher syndrome type 1D — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Usher syndrome type 1D, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Usher syndrome type 1D?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Usher syndrome type 1D, filtered to your area.

Are there clinical trials for Usher syndrome type 1D?

Tomeko shows live, recruiting studies for Usher syndrome type 1D from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com