You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Usher syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Usher syndrome hub →Usher syndrome is a rare condition. Also known as Retinitis pigmentosa-deafness syndrome, Retinitis pigmentosa-hearing loss syndrome, USH. Tomeko brings together the specialists, research, clinical trials, treatments and community for Usher syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:886 · OMIM 276900, 276901, 276902 · ICD-10 H35.5 · GARD 0007843
Start by learning the basics from an authoritative source, find a specialist or center that sees Usher syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Usher syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Usher syndrome from ClinicalTrials.gov on the hub.