You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Urban-Rogers-Meyer syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Urban-Rogers-Meyer syndrome hub →Urban-Rogers-Meyer syndrome is a rare condition. Also known as Intellectual disability-short stature-hand contractures-genital anomalies syndrome, Prader-Willi habitus-osteopenia-camptodactyly syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Urban-Rogers-Meyer syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:3409 · OMIM 264010 · ICD-10 Q87.8 · GARD 0005426
Start by learning the basics from an authoritative source, find a specialist or center that sees Urban-Rogers-Meyer syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Urban-Rogers-Meyer syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Urban-Rogers-Meyer syndrome from ClinicalTrials.gov on the hub.