You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Unverricht-Lundborg syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Unverricht-Lundborg syndrome hub →Unverricht-Lundborg syndrome is a rare condition. Also known as EPM1, Progressive myoclonus epilepsy type 1, ULD, Unverricht-Lundborg disease. Tomeko brings together the specialists, research, clinical trials, treatments and community for Unverricht-Lundborg syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:308 · OMIM 254800, 310370, 612437 · ICD-10 G40.3 · GARD 0003876
Start by learning the basics from an authoritative source, find a specialist or center that sees Unverricht-Lundborg syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Unverricht-Lundborg syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Unverricht-Lundborg syndrome from ClinicalTrials.gov on the hub.