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Ullrich congenital muscular dystrophy

Just diagnosed with Ullrich congenital muscular dystrophy?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Ullrich congenital muscular dystrophy, look for clinical trials, and connect with others living with it — all in one place.

Open the full Ullrich congenital muscular dystrophy hub →

Overview

Ullrich congenital muscular dystrophy is a rare condition. Also known as UCMD, Ullrich scleroatonic muscular dystrophy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Ullrich congenital muscular dystrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:75840 · OMIM 254090, 616470, 620727 · ICD-10 G71.2 · GARD 0004769

Find care for Ullrich congenital muscular dystrophy

Authoritative references for Ullrich congenital muscular dystrophy

Common questions

I was just diagnosed with Ullrich congenital muscular dystrophy — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Ullrich congenital muscular dystrophy, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Ullrich congenital muscular dystrophy?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Ullrich congenital muscular dystrophy, filtered to your area.

Are there clinical trials for Ullrich congenital muscular dystrophy?

Tomeko shows live, recruiting studies for Ullrich congenital muscular dystrophy from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com