You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Ulbright-Hodes syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Ulbright-Hodes syndrome hub →Ulbright-Hodes syndrome is a rare condition. Also known as Renal dysplasia-limb defects syndrome, Renal dysplasia-mesomelia-radiohumeral fusion syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Ulbright-Hodes syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:3404 · OMIM 266910 · ICD-10 Q87.8 · GARD 0005394
Start by learning the basics from an authoritative source, find a specialist or center that sees Ulbright-Hodes syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Ulbright-Hodes syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Ulbright-Hodes syndrome from ClinicalTrials.gov on the hub.