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Turcot syndrome

Just diagnosed with Turcot syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Turcot syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Turcot syndrome hub →

Overview

Turcot syndrome is a rare condition. Also known as CMMR-D syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Turcot syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:252202 · OMIM 276300, 619096, 619097 · ICD-10 D80.8 · GARD 0017217

Find care for Turcot syndrome

Authoritative references for Turcot syndrome

Common questions

I was just diagnosed with Turcot syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Turcot syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Turcot syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Turcot syndrome, filtered to your area.

Are there clinical trials for Turcot syndrome?

Tomeko shows live, recruiting studies for Turcot syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com