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Tuberous sclerosis syndrome

Just diagnosed with Tuberous sclerosis syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Tuberous sclerosis syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Tuberous sclerosis syndrome hub →

Overview

Tuberous sclerosis syndrome is a rare condition. Also known as Bourneville syndrome, Tuberous sclerosis. Tomeko brings together the specialists, research, clinical trials, treatments and community for Tuberous sclerosis syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:805 · OMIM 191100, 613254 · ICD-10 Q85.1 · GARD 0007830

Find care for Tuberous sclerosis syndrome

Authoritative references for Tuberous sclerosis syndrome

Common questions

I was just diagnosed with Tuberous sclerosis syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Tuberous sclerosis syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Tuberous sclerosis syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Tuberous sclerosis syndrome, filtered to your area.

Are there clinical trials for Tuberous sclerosis syndrome?

Tomeko shows live, recruiting studies for Tuberous sclerosis syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com