You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Troyer syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Troyer syndrome hub →Troyer syndrome is a rare condition. Also known as Childhood-onset spastic paraparesis-distal muscle wasting syndrome, SPG20, Troyer syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Troyer syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:101000 · OMIM 275900 · ICD-10 G11.4 · GARD 0005372
Start by learning the basics from an authoritative source, find a specialist or center that sees Troyer syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Troyer syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Troyer syndrome from ClinicalTrials.gov on the hub.