You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Tibial muscular dystrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Tibial muscular dystrophy hub →Tibial muscular dystrophy is a rare condition. Also known as Finnish tibial muscular dystrophy, TMD, Udd myopathy, Distal myopathy, Udd type, Distal titinopathy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Tibial muscular dystrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:609 · OMIM 600334 · ICD-10 G71.0 · GARD 0013154
Start by learning the basics from an authoritative source, find a specialist or center that sees Tibial muscular dystrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Tibial muscular dystrophy, filtered to your area.
Tomeko shows live, recruiting studies for Tibial muscular dystrophy from ClinicalTrials.gov on the hub.