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Teebi hypertelorism syndrome 1

Just diagnosed with Teebi hypertelorism syndrome 1?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Teebi hypertelorism syndrome 1, look for clinical trials, and connect with others living with it — all in one place.

Open the full Teebi hypertelorism syndrome 1 hub →

Overview

Teebi hypertelorism syndrome 1 is a rare condition. Also known as Brachycephalofrontonasal dysplasia, Teebi hypertelorism syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Teebi hypertelorism syndrome 1 so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:1519 · OMIM 145420 · ICD-10 Q87.0 · GARD 0000957

Find care for Teebi hypertelorism syndrome 1

Authoritative references for Teebi hypertelorism syndrome 1

Common questions

I was just diagnosed with Teebi hypertelorism syndrome 1 — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Teebi hypertelorism syndrome 1, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Teebi hypertelorism syndrome 1?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Teebi hypertelorism syndrome 1, filtered to your area.

Are there clinical trials for Teebi hypertelorism syndrome 1?

Tomeko shows live, recruiting studies for Teebi hypertelorism syndrome 1 from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com