You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Tangier disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full Tangier disease hub →Tangier disease is a rare condition. Also known as ATP-binding cassette transporter A1 deficiency, Analphalipoproteinemia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Tangier disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:31150 · OMIM 205400 · ICD-10 E78.6 · GARD 0007731
Start by learning the basics from an authoritative source, find a specialist or center that sees Tangier disease, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Tangier disease, filtered to your area.
Tomeko shows live, recruiting studies for Tangier disease from ClinicalTrials.gov on the hub.