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Symbrachydactyly of hands and feet

Just diagnosed with Symbrachydactyly of hands and feet?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Symbrachydactyly of hands and feet, look for clinical trials, and connect with others living with it — all in one place.

Open the full Symbrachydactyly of hands and feet hub →

Overview

Symbrachydactyly of hands and feet is a rare condition. Also known as De Smet-Fabry-Fryns syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Symbrachydactyly of hands and feet so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:1570 · ICD-10 Q73.8 · GARD 0001680

Find care for Symbrachydactyly of hands and feet

Authoritative references for Symbrachydactyly of hands and feet

Common questions

I was just diagnosed with Symbrachydactyly of hands and feet — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Symbrachydactyly of hands and feet, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Symbrachydactyly of hands and feet?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Symbrachydactyly of hands and feet, filtered to your area.

Are there clinical trials for Symbrachydactyly of hands and feet?

Tomeko shows live, recruiting studies for Symbrachydactyly of hands and feet from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com