You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Sturge-Weber syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Sturge-Weber syndrome hub →Sturge-Weber syndrome is a rare condition. Also known as Encephalofacial angiomatosis, Encephalotrigeminal angiomatosis, SWS, Sturge-Weber-Dimitri syndrome, Sturge-Weber-Krabbe angiomatosis, Sturge-Weber-Krabbe syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Sturge-Weber syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:3205 · OMIM 185300 · ICD-10 Q85.8 · GARD 0007706
Start by learning the basics from an authoritative source, find a specialist or center that sees Sturge-Weber syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Sturge-Weber syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Sturge-Weber syndrome from ClinicalTrials.gov on the hub.