You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Stromme syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Stromme syndrome hub →Stromme syndrome is a rare condition. Also known as Apple-peel intestinal atresia-ocular anomalies-microcephaly syndrome, Jejunal atresia-microcephaly-ocular anomalies syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Stromme syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:506307 · OMIM 243605 · ICD-10 Q13.8 · GARD 0017945
Start by learning the basics from an authoritative source, find a specialist or center that sees Stromme syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Stromme syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Stromme syndrome from ClinicalTrials.gov on the hub.