You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Stickler syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Stickler syndrome hub →Stickler syndrome is a rare condition. Also known as Hereditary progressive arthroophthalmopathy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Stickler syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:828 · OMIM 108300, 604841, 609508 · ICD-10 Q87.0 · GARD 0010782
Start by learning the basics from an authoritative source, find a specialist or center that sees Stickler syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Stickler syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Stickler syndrome from ClinicalTrials.gov on the hub.