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Steinert myotonic dystrophy syndrome

Just diagnosed with Steinert myotonic dystrophy syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Steinert myotonic dystrophy syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Steinert myotonic dystrophy syndrome hub →

Overview

Steinert myotonic dystrophy syndrome is a rare condition. Also known as Myotonic dystrophy type 1, Steinert disease. Tomeko brings together the specialists, research, clinical trials, treatments and community for Steinert myotonic dystrophy syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:273 · OMIM 160900 · ICD-10 G71.1 · GARD 0008310

Find care for Steinert myotonic dystrophy syndrome

Authoritative references for Steinert myotonic dystrophy syndrome

Common questions

I was just diagnosed with Steinert myotonic dystrophy syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Steinert myotonic dystrophy syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Steinert myotonic dystrophy syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Steinert myotonic dystrophy syndrome, filtered to your area.

Are there clinical trials for Steinert myotonic dystrophy syndrome?

Tomeko shows live, recruiting studies for Steinert myotonic dystrophy syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com