You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Steel syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Steel syndrome hub →Steel syndrome is a rare condition. Also known as Bilateral hip and radial head dislocations-short stature-scoliosis-carpal coalitions-pes cavus-facial dysmorphism syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Steel syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:438117 · OMIM 615155 · ICD-10 Q87.5 · GARD 0017735
Start by learning the basics from an authoritative source, find a specialist or center that sees Steel syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Steel syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Steel syndrome from ClinicalTrials.gov on the hub.