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Silver-Russell syndrome due to an imprinting defect of 11p15

Just diagnosed with Silver-Russell syndrome due to an imprinting defect of 11p15?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Silver-Russell syndrome due to an imprinting defect of 11p15, look for clinical trials, and connect with others living with it — all in one place.

Open the full Silver-Russell syndrome due to an imprinting defect of 11p15 hub →

Overview

Silver-Russell syndrome due to an imprinting defect of 11p15 is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Silver-Russell syndrome due to an imprinting defect of 11p15 so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:231140 · ICD-10 Q87.1 · GARD 0020604

Find care for Silver-Russell syndrome due to an imprinting defect of 11p15

Authoritative references for Silver-Russell syndrome due to an imprinting defect of 11p15

Common questions

I was just diagnosed with Silver-Russell syndrome due to an imprinting defect of 11p15 — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Silver-Russell syndrome due to an imprinting defect of 11p15, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Silver-Russell syndrome due to an imprinting defect of 11p15?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Silver-Russell syndrome due to an imprinting defect of 11p15, filtered to your area.

Are there clinical trials for Silver-Russell syndrome due to an imprinting defect of 11p15?

Tomeko shows live, recruiting studies for Silver-Russell syndrome due to an imprinting defect of 11p15 from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com