You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Severe hemophilia B, look for clinical trials, and connect with others living with it — all in one place.
Open the full Severe hemophilia B hub →Severe hemophilia B is a rare condition. Also known as Severe congenital F9 deficiency, Severe congenital factor IX deficiency. Tomeko brings together the specialists, research, clinical trials, treatments and community for Severe hemophilia B so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:169793 · OMIM 306900 · ICD-10 D67 · GARD 0017056
Start by learning the basics from an authoritative source, find a specialist or center that sees Severe hemophilia B, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Severe hemophilia B, filtered to your area.
Tomeko shows live, recruiting studies for Severe hemophilia B from ClinicalTrials.gov on the hub.