You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Severe early-childhood-onset retinal dystrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Severe early-childhood-onset retinal dystrophy hub →Severe early-childhood-onset retinal dystrophy is a rare condition. Also known as EOSRD, Early-onset severe retinal dystrophy, SECORD. Tomeko brings together the specialists, research, clinical trials, treatments and community for Severe early-childhood-onset retinal dystrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:364055 · OMIM 608133, 610125, 614186 · ICD-10 H35.5 · GARD 0021565
Start by learning the basics from an authoritative source, find a specialist or center that sees Severe early-childhood-onset retinal dystrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Severe early-childhood-onset retinal dystrophy, filtered to your area.
Tomeko shows live, recruiting studies for Severe early-childhood-onset retinal dystrophy from ClinicalTrials.gov on the hub.