You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Scimitar syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Scimitar syndrome hub →Scimitar syndrome is a rare condition. Also known as Congenital pulmonary venolobar syndrome, Epibronchial right pulmonary vein syndrome, Halasz syndrome, Hypogenetic lung syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Scimitar syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:185 · ICD-10 Q26.8 · GARD 0018680
Start by learning the basics from an authoritative source, find a specialist or center that sees Scimitar syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Scimitar syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Scimitar syndrome from ClinicalTrials.gov on the hub.