You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Scapuloperoneal spinal muscular atrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Scapuloperoneal spinal muscular atrophy hub →Scapuloperoneal spinal muscular atrophy is a rare condition. Also known as Neurogenic scapuloperoneal amyotrophy, New England type, SPSMA, Scapuloperoneal neuronopathy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Scapuloperoneal spinal muscular atrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:431255 · OMIM 181405 · ICD-10 G12.1 · GARD 0010314
Start by learning the basics from an authoritative source, find a specialist or center that sees Scapuloperoneal spinal muscular atrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Scapuloperoneal spinal muscular atrophy, filtered to your area.
Tomeko shows live, recruiting studies for Scapuloperoneal spinal muscular atrophy from ClinicalTrials.gov on the hub.