You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Scalp syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Scalp syndrome hub →Scalp syndrome is a rare condition. Also known as Sebaceous nevus-CNS malformations-aplasia cutis congenital-limbal dermoid-pigmented nevus syndrome, Sebaceous nevus-central nervous system malformations-aplasia cutis congenital-limbal dermoid-pigmented nevus syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Scalp syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:370052 · ICD-10 Q84.8 · GARD 0021592
Start by learning the basics from an authoritative source, find a specialist or center that sees Scalp syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Scalp syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Scalp syndrome from ClinicalTrials.gov on the hub.