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SAPHO syndrome

Just diagnosed with SAPHO syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees SAPHO syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full SAPHO syndrome hub →

Overview

SAPHO syndrome is a rare condition. Also known as Synovitis-acne-pustulosis-hyperostosis-osteitis syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for SAPHO syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:793 · ICD-10 M86.3 · GARD 0007606

Find care for SAPHO syndrome

Authoritative references for SAPHO syndrome

Common questions

I was just diagnosed with SAPHO syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees SAPHO syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for SAPHO syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat SAPHO syndrome, filtered to your area.

Are there clinical trials for SAPHO syndrome?

Tomeko shows live, recruiting studies for SAPHO syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com