You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Roussy-Lévy syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Roussy-Lévy syndrome hub →Roussy-Lévy syndrome is a rare condition. Also known as Hereditary areflexic dystasia, Roussy-Lévy type. Tomeko brings together the specialists, research, clinical trials, treatments and community for Roussy-Lévy syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:3115 · OMIM 180800 · ICD-10 G60.0 · GARD 0004741
Start by learning the basics from an authoritative source, find a specialist or center that sees Roussy-Lévy syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Roussy-Lévy syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Roussy-Lévy syndrome from ClinicalTrials.gov on the hub.