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Rett syndrome

Just diagnosed with Rett syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Rett syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Rett syndrome hub →

Overview

Rett syndrome is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Rett syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:778 · OMIM 312750 · ICD-10 F84.2 · GARD 0005696

Find care for Rett syndrome

Authoritative references for Rett syndrome

Common questions

I was just diagnosed with Rett syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Rett syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Rett syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Rett syndrome, filtered to your area.

Are there clinical trials for Rett syndrome?

Tomeko shows live, recruiting studies for Rett syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com