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Retinitis pigmentosa

Just diagnosed with Retinitis pigmentosa?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Retinitis pigmentosa, look for clinical trials, and connect with others living with it — all in one place.

Open the full Retinitis pigmentosa hub →

Overview

Retinitis pigmentosa is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Retinitis pigmentosa so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:791 · OMIM 153870, 180100, 180104 · ICD-10 H35.5 · GARD 0005694

Find care for Retinitis pigmentosa

Patient organizations for Retinitis pigmentosa

Authoritative references for Retinitis pigmentosa

Common questions

I was just diagnosed with Retinitis pigmentosa — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Retinitis pigmentosa, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Retinitis pigmentosa?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Retinitis pigmentosa, filtered to your area.

Are there clinical trials for Retinitis pigmentosa?

Tomeko shows live, recruiting studies for Retinitis pigmentosa from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com