You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Ravine syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Ravine syndrome hub →Ravine syndrome is a rare condition. Also known as Progressive encephalopathy with severe infantile anorexia, Reunion island-anorexia-vomiting which is irrepressible-neurological signs syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Ravine syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:99852 · ICD-10 E75.2 · GARD 0003231
Start by learning the basics from an authoritative source, find a specialist or center that sees Ravine syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Ravine syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Ravine syndrome from ClinicalTrials.gov on the hub.