You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Ramos-Arroyo syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Ramos-Arroyo syndrome hub →Ramos-Arroyo syndrome is a rare condition. Also known as Corneal anesthesia-deafness-intellectual disability syndrome, Corneal anesthesia-hearing loss-intellectual disability syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Ramos-Arroyo syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1051 · OMIM 122430 · ICD-10 Q87.8 · GARD 0004636
Start by learning the basics from an authoritative source, find a specialist or center that sees Ramos-Arroyo syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Ramos-Arroyo syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Ramos-Arroyo syndrome from ClinicalTrials.gov on the hub.