You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Radial hemimelia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Radial hemimelia hub →Radial hemimelia is a rare condition. Also known as Isolated congenital longitudinal deficiency of the radius, Isolated radial club hand, Isolated radial longitidinal meromelia, Isolated radial ray agenesis. Tomeko brings together the specialists, research, clinical trials, treatments and community for Radial hemimelia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:93321 · ICD-10 Q71.4 · GARD 0000225
Start by learning the basics from an authoritative source, find a specialist or center that sees Radial hemimelia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Radial hemimelia, filtered to your area.
Tomeko shows live, recruiting studies for Radial hemimelia from ClinicalTrials.gov on the hub.