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Pure hereditary spastic paraplegia

Just diagnosed with Pure hereditary spastic paraplegia?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Pure hereditary spastic paraplegia, look for clinical trials, and connect with others living with it — all in one place.

Open the full Pure hereditary spastic paraplegia hub →

Overview

Pure hereditary spastic paraplegia is a rare condition. Also known as Pure HSP, Pure SPG, Pure familial spastic paraplegia, Uncomplicated HSP, Uncomplicated SPG, Uncomplicated familial spastic paraplegia, Uncomplicated hereditary spastic paraplegia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Pure hereditary spastic paraplegia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:102012 · GARD 0019822

Find care for Pure hereditary spastic paraplegia

Authoritative references for Pure hereditary spastic paraplegia

Common questions

I was just diagnosed with Pure hereditary spastic paraplegia — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Pure hereditary spastic paraplegia, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Pure hereditary spastic paraplegia?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Pure hereditary spastic paraplegia, filtered to your area.

Are there clinical trials for Pure hereditary spastic paraplegia?

Tomeko shows live, recruiting studies for Pure hereditary spastic paraplegia from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com