You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Pure autonomic failure, look for clinical trials, and connect with others living with it — all in one place.
Open the full Pure autonomic failure hub →Pure autonomic failure is a rare condition. Also known as Bradbury-Eggleston syndrome, Idiopathic orthostatic hypotension, PAF, Pure dysautonomia, Pure idiopatic dysautonomia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Pure autonomic failure so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:441 · ICD-10 G90.8 · GARD 0010428
Start by learning the basics from an authoritative source, find a specialist or center that sees Pure autonomic failure, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Pure autonomic failure, filtered to your area.
Tomeko shows live, recruiting studies for Pure autonomic failure from ClinicalTrials.gov on the hub.