You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Pseudo von Willebrand disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full Pseudo von Willebrand disease hub →Pseudo von Willebrand disease is a rare condition. Also known as PT-VWD, Platelet type-von Willebrand disease, Pseudo-von Willebrand disease type 2B. Tomeko brings together the specialists, research, clinical trials, treatments and community for Pseudo von Willebrand disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:52530 · OMIM 177820 · ICD-10 D69.8 · GARD 0008312
Start by learning the basics from an authoritative source, find a specialist or center that sees Pseudo von Willebrand disease, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Pseudo von Willebrand disease, filtered to your area.
Tomeko shows live, recruiting studies for Pseudo von Willebrand disease from ClinicalTrials.gov on the hub.