You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Prune belly syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Prune belly syndrome hub →Prune belly syndrome is a rare condition. Also known as Abdominal muscle deficiency syndrome, Eagle-Barret syndrome, Obrinsky syndrome, Triad syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Prune belly syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2970 · OMIM 100100 · ICD-10 Q79.4 · GARD 0007479
Start by learning the basics from an authoritative source, find a specialist or center that sees Prune belly syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Prune belly syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Prune belly syndrome from ClinicalTrials.gov on the hub.