You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Progressive myositis ossificans, look for clinical trials, and connect with others living with it — all in one place.
Open the full Progressive myositis ossificans hub →Progressive myositis ossificans is a rare condition. Also known as FOP, Myositis ossificans progressiva, Stone man syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Progressive myositis ossificans so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:337 · OMIM 135100 · ICD-10 M61.1 · GARD 0006445
Start by learning the basics from an authoritative source, find a specialist or center that sees Progressive myositis ossificans, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Progressive myositis ossificans, filtered to your area.
Tomeko shows live, recruiting studies for Progressive myositis ossificans from ClinicalTrials.gov on the hub.