You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Progressive familial heart block, look for clinical trials, and connect with others living with it — all in one place.
Open the full Progressive familial heart block hub →Progressive familial heart block is a rare condition. Also known as Hereditary Lenègre disease, Hereditary Lev disease, Hereditary Lev-Lenègre disease, Hereditary PCCD, Hereditary bundle branch defect, Hereditary progressive heart block. Tomeko brings together the specialists, research, clinical trials, treatments and community for Progressive familial heart block so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:871 · OMIM 113900, 115080, 140400 · ICD-10 I45.8 · GARD 0010005
Start by learning the basics from an authoritative source, find a specialist or center that sees Progressive familial heart block, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Progressive familial heart block, filtered to your area.
Tomeko shows live, recruiting studies for Progressive familial heart block from ClinicalTrials.gov on the hub.