You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Proboscis lateralis, look for clinical trials, and connect with others living with it — all in one place.
Open the full Proboscis lateralis hub →Proboscis lateralis is a rare condition. Also known as Congenital tubular nose. Tomeko brings together the specialists, research, clinical trials, treatments and community for Proboscis lateralis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:141099 · ICD-10 Q30.8 · GARD 0019947
Start by learning the basics from an authoritative source, find a specialist or center that sees Proboscis lateralis, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Proboscis lateralis, filtered to your area.
Tomeko shows live, recruiting studies for Proboscis lateralis from ClinicalTrials.gov on the hub.